Here’s a list of current
and recent projects.
Advance Care Planning for people experiencing homelessness. This study will develop a new process to support future care and legacy planning which will address the end-of-life priorities of street whānau. We will also develop resources to support Te Tāpui Atawhai/Auckland City Mission staff with the skills, knowledge and confidence required to have conversations about death, dying and future planning. The project is funded by the Auckland Medical Research Foundation and will begin in March next year and run for 18 months. PI’s Jackie Robinson and Stella Black.
Maungārongo: exploring palliative care need for incarcerated New Zealanders. This project will address the provision of palliative care for incarcerated non-Māori and Māori of all genders. This issue has been highlighted as an equity concern internationally and within Aotearoa by Manatu Hauora Ministry of Health and Hospice New Zealand, who are both supporting this project. Interviews are being conducted with people providing health, spiritual and/or cultural support to people in prison. The project is funded by an HRC Activation Grant. PI’s Merryn Gott and Tess Moeke-Maxwell.
Palliative Care and Hospice for Cancer Patients Post-Covid-19: The Way Forward. Cancer patients were considered a vulnerable group during the COVID-19 pandemic. The project will consist of two parts. Part one will involve interviews with 30 representatives from hospices, community groups, non-governmental organisations, and community care providers (GPs, district nurses), discussing the challenges of and responses to palliative care for cancer patients during and after the pandemic. In Part Two five to ten representatives from Part One will come together in a workshop to discuss ideas for new practices and policies to support cancer patients with palliative care needs and their families into the future. Cancer Research Trust NZ PI: Rosemary Frey; Team: Tess Moeke-Maxwell, Jackie Robinson, Deborah Raphael, Lisa Williams and Merryn Gott.
Perspectives on Telehealth for Palliative Care for Underserved Populations. This project aims to build upon current research and increase our understanding of what a successful palliative and end-of-life care telehealth model would look like for underserved populations in New Zealand, Australia, and the United Kingdom. Catalyst Grant. PI: Rosemary Frey; Team: Vanessa Burholt, Michelle Honey; Aileen Collier, Flinders University, Australia; Matthew Allsop, Leeds University, UK.
Palliative and end of life care needs, including assisted dying of Māori and non- Māori TLGBTQI+ older adults, Health Research Council 2023 Activation grant. PI: Lisa Williams.
Vivian: exploring the role of a graphic novel in nursing education on gender and palliative care, Universitas 21 (U21). A multi-national study with Linnaeus University, Sweden and the University of Birmingham. PI: Lisa Williams.
Rāpua te Mārama: Bereaved Māori whānau experiences of palliative care and death, Health Research Council. A qualitative kaupapa Māori study uses a public health lens to investigate the end-of-life experiences of 26 Māori whānau who had someone in their ‘bubble’ die during COVID-19 lockdown. PI: Tess Moeke-Maxwell.
Dying as a health and social justice issue: exploring the impact of deprivation, Health Research Council. An investigation into the experiences of services at the end of life for people living in areas of deprivation. Co-PIs Jackie Robinson and Merryn Gott.
Social connectedness among older people during Covid-19, Auckland Medical Research Foundation. An exploration of the mental health impact of isolation on the elderly. PI: Merryn Gott.
Tupu Tika: Building whānau capacity to carry out end-of-life and end-stage care, Health Research Council. PI: Tess Moeke-Maxwell
Pae Herenga: An investigation of Māori whānau end of life cultural care customs. Health Research Council. PI Tess Moeke-Maxwell Maxwell. AIs Rawiri Wharemate, Merryn Gott, Janine Wiles, Linda Nikora.
Ageing Well National Science Challenge, MBIE. A follow-up study to our initial NSC grant looking into inter-generational social connection. PI: Merryn Gott and Lisa Williams.
Dying in the Margins: uncovering the reasons for unequal access to home dying for the socio-economically deprived. Economic and Social Research Council. PI: Naomi Richards. AIs Merryn Gott and Emma Carduff.
The role of the district nurse within an integrated model of community based palliative care. Cancer Research Society. PI Jackie Robinson. AIs Merryn Gott, Tess Moeke-Maxwell.
The role of the district nurse within an integrated model of community based palliative care. A+ Trust. PI Jackie Robinson. AIs Merryn Gott, Tess Moeke-Maxwell.
Identifying opportunities to improve palliative care for people with cardiac disease. Heart Foundation. PI: Jackie Robinson. AIs Merryn Gott, Tess Moeke-Maxwell.
Developing new methods to research the economic costs of family caregiving – an international collaboration. World Universities Network. PI Merryn Gott and Clare Gardiner.
End of Life Care Provision by Auckland DHB. Auckland Academic Health Alliance. PIs Merryn Gott and Andrew Old. AIs Jackie Robinson, Rosemary Frey, Tess Moeke-Maxwell.
International Collaborative Network project to advance international research on participatory methods with people living with dementia. Economic and Social Research Council. PI: John Keady. NZ PI: Lisa Williams.
SHARE midpoint assessment. Health Research Council. PI: Rosemary Frey. AIs: Merryn Gott, Michal Boyd, Jackie Robinson, Tess Moeke-Maxwell.
SHARE: An Evaluation. Freemasons Foundation. PI: Rosemary Frey. AIs: Merryn Gott, Michal Boyd, Jackie Robinson, Tess Moeke-Maxwell.
Tapinga ‘a Maama: Pacific life and death in advanced age. PI Ofa Dewes, AIs: Merryn Gott, Tess Moeke-Maxwell, Lisa Williams, Janine Wiles, Mervina Cash-Kaeo, Malia Hamani. Ministry of Business, Innovation and Employment (MBIE) National Science Challenge Ageing Well.
Phase 2 End of Life with Dementia Evaluation Research ELDER. PI, Michal Boyd, AIs: Merryn Gott, Jackie Robinson, Julia Slark, Rosemary Frey, Susan Foster, Deborah Balmer, Tess Moeke-Maxwell, Heather McLeod. Ministry of Business, Innovation and Employment (MBIE) National Science Challenge- Ageing Well.
Social connection, isolation and loneliness among Maori, Pacific, NZ European and Asian older people. PI: Merryn Gott, AIs: Louise Rees, Judith Davey, Tess Moeke-Maxwell, Janine Wiles, Richard Edlin, Robyn Dixon, Ofa Dewes, Hong-Jae Park, Lisa Williams, Juliana Mansvelt, Tessa Morgan, Hamish Jamieson, Clare Gardiner. Ministry of Business, Innovation and Employment (MBIE) National Science Challenge Ageing Well. In partnership with Age Concern New Zealand.
Dementia Pathways, PI, Michal Boyd, AIs: Merryn Gott, Jackie Robinson, Ngaire Kerse (School of Population Health) and Martin Connolly (School of Medicine)
Perpetual Guardian Trust.
Pae Herenga whanau caregiving pilot project. PI: Tess Moeke-Maxwell (Ngai Tai), AIs: Te Arai Kaumatua Advisory Roopu, Merryn Gott. Health Research Council of New Zealand, Nga Kanohi Kitea grant
A survey to pilot VOICEs-NZ. PI: Merryn Gott, AIs: Andrew Old, Jackie Robinson, Rosemary Frey, Tess Moeke-Maxwell. Academic Health Alliance.
Take care of yourself. Creating resources for whanau and family caring for relatives with a life-limiting illness. PI: Lisa Williams, AIs: Ofa Dewes, Stella Black, Tess Moeke-Maxwell, Ros Capper, Michal Boyd, Rosemary Frey, Merryn Gott. School of Nursing
Te Pakeketanga: living and dying in advanced old age. PI: Merryn Gott, AIs: Tess Moeke-Maxwell, Stella Black, Lisa Williams, Gabriella Trussardi, Janine Wiles, Ngaire Kerse, Anna Rolleston. Health Research Council of New Zealand
Exploring key factors in potentially avoidable admissions from aged residential care: Phase 2. PI: Rosemary Frey, AIs: Merryn Gott, Michal Boyd, Jackie Robinson, Sue Foster. The University of Auckland
Potentially inappropriate interventions and admissions at end of life. PI: Merryn Gott. Health Research Council of New Zealand, in partnership with Auckland District Health Board.